A research group from University College London (UCL) has recently contacted BOBS regarding a study they are undertaking about SEND, with the aim of gaining a better understanding of family members’ experiences of caregiving, with a particular focus on perceptions and experiences relating to others’ attitudes to learning disability.
Here’s a message from the researchers:
“Of course I want to have my say. If research is a way to do so, then yes, I’m in, I’ll help. Ignorance is the biggest issue we face.” – Nnenna
Many things are assumed about caregivers’ perceptions but research that actually asks them directly is thin on the ground. For this reason, we are undertaking this study to understand family members’ experiences of and perceptions of other people’s attitudes to learning disability, and more specifically towards family members’ themselves as the parent/sibling or close relative of someone with a learning disability. We are looking to hear directly from family members of individuals with learning disabilities (children as well as adults) – they will be asked to complete a survey that will take approximately 20 minutes. The study has formal ethical approval from University College London’s Research Ethics Committee. Please follow the link: https://uclpsych.eu.qualtrics.com/jfe/form/SV_37CMEb2ZdwYusXH
I’ve answered the survey myself and would like ask for your support as well. Hopefully, this research would not only shed more light about people’s perceptions and attitudes towards learning disabilities but also come up with solutions/recommendations and/or inspire further research that would ultimately benefit the SEND community at large.